Note: Although the information here is useful for anyone with swollen feet, it is intended for people
with an ongoing problem with swelling of feet and legs due to being unable to walk. If this is not your
situation, please consult your doctor to determine the cause and treatment of your swelling. If there is
swelling or puffiness of your fingers or around your eyes, see your doctor promptly.
The Cause of the Swelling
The heart pumps blood through the arteries under high pressure. As the arteries branch out into smaller
arteries and then into tiny capillaries, pressure decreases. Oxygen is removed from the blood in the
capillaries and then the "used" blood flows into veins for the trip back to the lungs for another
load of oxygen. Unfortunately, the pressure generated by the heartbeat has been lost by then and the blood
relies on simple back pressure to move back up to the heart. This is aided by muscle activity. Ordinary
muscle movement "squeezes" the veins and pushes the blood along. The veins have little one-way
valves all along the way that keep blood from draining backward as it is pushed upwards.
When muscle movement is lost, it becomes much harder to get the blood back up from the legs. It pools
in the veins and causes them to get distended. Water seeps from distended veins out into the surrounding
tissue and your legs and feet swell (edema). With repeated episodes of swelling, the little veins become
damaged and leaky so that water seeps into the tissues even more easily. At the same time, the valves are
collapsing under the heavy weight of all that blood that is pooled on top of them. That damage to the
valves is permanent. Without the valves, the blood pools in the feet even worse than before and
remaining valves are under even more pressure and more likely to fail. The circulation to the skin will be
affected in time. The skin of the ankles and lower legs will be discolored (bronzing) and the skin fragile.
Open sores called stasis ulcers develop. Because the blood flow to skin is poor, these ulcers are very
difficult to heal.
Doctors aren't very good about helping with swelling. They will offer prescriptions for TED hose
(somewhat helpful) and "water pills" (which should be used as a last resort only). And the first
thing they will say is to put your legs up to minimize the swelling but they don't tell you how to do
Don't be fooled by an adjustable bed or hospital bed. The gizmo that lifts your legs may only lift your
knees. Your feet may be left hanging down on the far side of your knees. That is actually worse for
circulation to them than lying flat. Put pillows under the foot of the mattress to get the feet back up to
the level of your heart.
Look at is the chairs you sit in. A recliner may seem like the ideal way to keep your feet
up and swelling down but it is NOT! There are two big problems with most recliners. First, the foot
rest section is made in such a way that all the weight of your legs rests on the calves. That is really bad
for circulation. Second, putting your feet up - even way, way up - without "unfolding" at the
hips is minimally helpful as that bend interferes with the already difficult job of moving blood upward to
your heart. Lift chairs are wonderful and most of them are recliners, but if you spend most of your time in
a recliner, I strongly recommend that you bring the foot rest up only when you lower the back rest. Rather
than spending all your time sitting up with the foot rest up, you will probably have better results if you
leave the footrest down but take several breaks during the day to recline as flat as possible with the
footrests up as far as possible. This self discipline is so easy to advise but such a nuisance to stick
What you need is a chair that can recline fully to what is called Trendelenberg position, feet slightly
higher upper body. I found some at SpinLife, a website that specializes in equipment
for wheelchair users, but has a large selection of recliners. This page has a comparison chart that shows
which chairs have Trendelenberg. These chairs are all recliner/lift chairs and all the pictures show them
in a lift position. None show the chair reclined so I can't tell if any have the type of footrest that
supports the entire leg, not just propping up the calf. There is a reference to "full chase pad" on some
models and that may differentiate the better type of leg rest. If I were buying, I would check that out
first. I would also find out about returns if the chair doesn't fit you!
All too often I see PALS and other people in wheelchairs whose foot drop has been allowed to progress
to the point where their feet cannot rest flat on the footrest. This guarantees that the feet and lower
legs will swell badly and the valves will collapse like dominos! Don't let this happen! As soon as foot
drop droops its ugly head, start using a footrest or positioning boots in bed whenever you are on your
back. A footrest can be as simple as a plywood or plexiglass piece between the mattress and foot board and
pillows in front of it to keep the ankles at a normal angle. While up during the day, wear your AFOs (Ankle
Foot Orthotics. These below the knee braces the keep the foot at a right angle to the ankle to prevent
Once you quit walking you don't need the AFOs but you do need to keep your feet flat on your footrests.
People complain that the footrests are hard and cold. Slippers solve that but aren't as good as wearing
shoes for correct positioning of your feet. All too often PALS quit wearing shoes because their toes curl
under when they try to get them on. Unless your spasticity is bad, here is how to keep wearing shoes.
Buy lace up shoes a full size larger than your normal and extra wide (W) or WW wide.
Remove the lining of the shoes if it is spongy or soft. The inside has to allow your foot to slide
Find socks that are thin and smooth for easy sliding. Compression hose work very well. (Don't buy
the kind with open toes. They are for hospital use to check for circulation after leg surgery or a cast
is first put on.)
When putting the shoes on, pull the tongue forward to loosen the laces as wide as possible. The
toes will still want to curl under but unless your spasticity is bad, they should relax after a minute
and slide into place. Twisting the toe of the shoe side to side will help get the toes comfortably
Whether you sit in a regular chair, recliner, or a wheel chair, it must be properly fitted to you. You
need to make sure that your leg to floor/foot rest distance is short enough that there is minimal pressure
at the back of the lower thigh and knee. Having your feet "dangle" is a sure-fire way to cause
swelling! Put a box/platform under your feet (an old hard side suitcase worked great for me - lightweight
and had a handle) or raise your wheelchair foot rest an inch or so. The objective is to make certain there
is minimal pressure on the back of your knees/thighs. If you add a ROHO or other cushion you need to adjust
your platform/foot rest upward to make up for the height of the cushion. A note of caution: If your
feet are too high, your weight will be shifted back on your tail bone and cause a pressure problem there.
It is a balancing act to find the happy medium for footrest height!
Standard power wheelchair leg lifts are fine for adjusting your legs while sitting up, but when you lie
back in your chair and raise the footrests, the footrests are suddenly too short! Your knees have to bend
or you need a big pillow to get your heels above the footrests. Very inconvenient and hard to get
comfortable! The solution is to order "articulating" leg rests. These lengthen as they lift so that your
legs aren't scrunched even with the legs all the way up. Comfortable for elevating your feet to reduce
swelling or just catching a nap!
The best treatment for leg swelling that I have found is something that I discovered entirely by
accident: More time in bed. When my husband was working, I spent about seven hours in bed at night
and then would lie back in my recliner for another two or three hours in the afternoon. Even with that, my
legs were swollen by noon, miserably uncomfortable by evening and absolutely painful by bedtime. When my
husband retired, I was able to go to bed at the usual time, listen to books on tape for an hour or two, and
then sleep late in the morning. Instead of spending 10 hours lying with my feet up in two separate
sessions, I began spending 10 hours or more in bed all at one stretch. Within a matter of days after
starting this routine, I noticed that the swelling was minimal. Now I don't even have to lie down in
the afternoon in order to be comfortable in the evening! I don't know if this is due to spending more
time lying down at one stretch, spending all my lying down time in a bed rather than a recliner, getting
more sleep, or some combination of the three. All I know is that in this has made an incredible difference
for me. Not only has it made my problems with swelling minimal, I feel better in general.
Another thing that helps is muscle activity. Granny's old rocking chair served a real
purpose beside putting babies to sleep! I find that the swelling is minimized on days when I am most
active. (Interpret that as days when I am frequently hauled in and out of my chair and forced to stagger a
few steps, whining all the way!) I guess I have some muscles left in my legs, even though I sure can't
feel 'em! Even passive range of motion exercises help.
Keep cool. A few minutes of being too warm, toasting my feet by the fire, or just sitting in the
spring4 sun is all it takes to turn my feet into balloons. (Blood vessels dilate when we are
warm.) Simply keeping my legs in the shade makes a difference, but I have also been known
to pour cold water over my feet on hot days when I need to be outside. Wet socks and tennis shoes are
still more comfortable than that miserable burning sensation of swollen feet!
Sometimes I also have problems with a burning sensation in my feet in bed at night. It doesn't
start until my feet began to warm up. It can get really bad in the middle of the night if I have the
electric blanket on and my feet get really warm. That is a real nuisance because the rest of my body gets
really chilled and I can't move at all if I pile on extra blankets. So, in cold weather I end up
sleeping with the electric blanket on, but my feet sticking out!
For some people, this burning pain becomes severe and doesn't seem to be relieved by getting the
swelling down. This might be the end result of long term or severe swelling. Some people find that
aspirin (not Tylenol) helps. Do not take aspirin if you are on anticoagulants (medications to thin the
blood). If burning pain is felt when swelling has not been a problem, discuss it with your
Limiting salt intake used to be high on the list of things to do to minimize swelling, and your
doctor may suggest it, but the need for that is questioned these days. I guess it is enough to say
don't over-indulge with salty foods.
Hospitals often use devices to improve blood flow to the feet of patients who are going to be
stuck in bed for a while in order to reduce the risk of blood clots. TED (elastic or compression)
stockings are by far the most common. By simply squeezing the legs and feet a little, they help keep
the veins from getting distended. You can ask your doctor for a prescription for these stockings, but
unless you have strong hands and arms, you will need help getting them on.
Hospitals also use Sequential Compression Devices that inflate and
deflate to help pump the blood along. Originally used for hospitalized people at risk of blood clots, they
are now available for home use to improve blood flow. This is very effective in reducing swelling as well
as the risk of blood clots in people who are not able to walk. They have some type of leg sleeves or boots
or wraps that are connected to a pump that causes compression in a sequential upward direction to improve
blood flow. With help from your doctor you may be able to get your insurance to cover the cost of this
equipment. It is not complicated to use, but you must be very careful to make sure that it is not rubbing
anywhere and causing breakdown of the skin. SCDs can be used while up in a chair which makes using them
Another option is a leg massage device. They are not medical devices and
are probably less effective for swelling than compression devices but may be very helpful. They don't
squeeze the blood upward, just massage the feet and legs. One big advantage is that they don't require any
type of boot or wrap, just placing your legs in the massager which is easier. Massagers are generally used
while up in a chair.
If you complain about swollen ankles and feet to your doctor, odds are he will whip out the old
prescription pad and put you on diuretics. I have real reservations about this because many of us
are borderline dehydrated half the time anyway. (Another contributing factor for the development of blood
clots.) It gets hard to reach a drink, or hard to swallow, or it is simply too hard to get to the bathroom
so we don't drink as much as we should. Diuretics cause your kidneys to remove more water from your
blood stream. The "thicker" blood is then able to "sponge up" more water on its travels
through the body so it does reduce the edema. It does nothing about the cause of the edema -- poor blood
flow – however. Using diuretics for swollen legs is kind of like taking a diuretic to lose weight -
sure it "works", but it doesn't really solve the problem.
I certainly won't say diuretics should never be used -- if nothing else works well enough to keep
the swelling under control, they need to be used because the swelling further damages the veins and valves
and the situation just gets worse. But all the things described above should be implemented first before
diuretics are even considered.